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EB Treatment

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Scientists Grew a Full Body Skin Replacement for Boy with EB
https://pixabay.com/en/child-cute-dad-father-love-man-1835730/

Scientists Grew a Full Body Skin Replacement for Boy with EB

  • Post author:Patient Worthy Contributor
  • Post published:November 9, 2017
  • Post category:Epidermolysis Bullosa/Rare Disease

Two years ago, a seven-year-old boy from Syria was in dire condition. 80% of his skin was gone; his entire body covered in wounds and abrasions. He still had some…

Continue Reading Scientists Grew a Full Body Skin Replacement for Boy with EB
How an EB Bucket List Can Get You Your Heart’s Desire
Source: pixabay.com

How an EB Bucket List Can Get You Your Heart’s Desire

  • Post author:Sabina Kennedy
  • Post published:January 23, 2017
  • Post category:Epidermolysis Bullosa/Rare Disease

Maybe we should chart our own course in life like one sweet baby girl who was born with a rare skin disease called Epidermolysis Bullosa. Little Joella lives with the…

Continue Reading How an EB Bucket List Can Get You Your Heart’s Desire
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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