Phase 2 Trial Announced for Potential COVID-19 Treatment TXA127
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Phase 2 Trial Announced for Potential COVID-19 Treatment TXA127

  As COVID-19 continues to spread, the rush for a treatment or cure continues. Today, on August 4, there are 18.2 million diagnosed cases worldwide, with an associated 692,000 deaths.…

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A New Phase 3 Trial for Recessive Dystrophic Epidermolysis Bullosa is Enrolling Patients
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A New Phase 3 Trial for Recessive Dystrophic Epidermolysis Bullosa is Enrolling Patients

A New Phase 3 Trial A new phase 3 study will begin soon this year at Stanford University. Abeona Therapeutics had been waiting on IRB approval to begin the trial,…

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Trial Application for Experimental Cannabinoid Epidermolysis Bullosa Treatment Gains Approval
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Trial Application for Experimental Cannabinoid Epidermolysis Bullosa Treatment Gains Approval

According to a story from prnewswire.com, the biopharmaceutical company InMed Pharmaceuticals, Inc. has recently announced that that company's Clinical Trial Application has been approved in the Netherlands. This approval will…

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With Clinical Hold Lifted, Abeona Moves Forward with Recessive Dystrophic Epidermolysis Bullosa Trial
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With Clinical Hold Lifted, Abeona Moves Forward with Recessive Dystrophic Epidermolysis Bullosa Trial

According to a story from Benzinga, the drug company Abeona Therapeutics, Inc. has recently announced plans to move forward with its phase 3 clinical trial following the lifting of the…

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Child with Epidermolysis Bullosa Lives Happily Thanks to Supporting Family and Community
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Child with Epidermolysis Bullosa Lives Happily Thanks to Supporting Family and Community

According to a story from The Squamish Chief, mother Emily Tomlinson is amazed by the capabilities of her three year old son Nash Smillie. Nash was born with a severe…

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Abeona Faces Clinical Hold from the FDA Ahead of Epidermolysis Bullosa Trial
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Abeona Faces Clinical Hold from the FDA Ahead of Epidermolysis Bullosa Trial

According to a story from globenewswire.com, the gene and cell therapy company Abeona Therapeutics Inc. recently announced that has received a letter from the US Food and Drug Administration (FDA)…

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Results From First Patient Treated in Epidermolysis Bullosa Phase 2 Trial are Extremely Promising

Epidermolysis Bullosa Epidermolysis bullosa (EB) is a rare condition affecting approximately 500,000 individuals globally. Patients in the United States and Europe account for 50,000 of these individuals. The hereditary condition is…

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Companies Announce Collaboration to Develop Gene Therapy for Recessive Dystrophic Epidermolysis Bullosa

According to a story from globenewswire.com, the gene therapy company Fibrocell Science, Inc. and the biopharmaceutical company Castle Creek Pharmaceuticals have recently announced a collaboration between the two companies. The…

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Phase 2 Trial Results for Epidermolysis Bullosa Coming Second Quarter of 2019

Epidermolysis Bullosa Epidermolysis Bullosa (EB) refers to a group of rare conditions which are characterized by fragile skin. Basically, the disease is caused by separation between the layers of the skin.…

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Phase 1 Gene Transfer Trial for Recessive Dystrophic Epidermolysis Bullosa is Recruiting Patients
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Phase 1 Gene Transfer Trial for Recessive Dystrophic Epidermolysis Bullosa is Recruiting Patients

According to a story from Debra of America, a new Phase 1 clinical trial being operated by Stanford University is currently recruiting participants. This trial will be a test of…

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Drug Developer Receives $900,000 for the Development of a Gene Therapy for Epidermolysis Bullosa
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Drug Developer Receives $900,000 for the Development of a Gene Therapy for Epidermolysis Bullosa

According to a story from pm360online.com, the gene therapy company Fibrocell Science, Inc., recently received an investment of $900,000 from the Epidermolysis Bullosa Medical Research Foundation (EBMRF) and the EB…

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This Company Will Work With Nonprofit Organizations to Develop New Treatment for Epidermolysis Bullosa
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This Company Will Work With Nonprofit Organizations to Develop New Treatment for Epidermolysis Bullosa

According to a story from PR Newswire, the biopharmaceutical company Constant Pharmaceuticals recently announced that it plans to develop its experimental compound TXA127 as a therapy for epidermolysis bullosa (EB).…

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Phase 2 Trial for an Experimental Epidermolysis Bullosa Treatment Begins Enrollment
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Phase 2 Trial for an Experimental Epidermolysis Bullosa Treatment Begins Enrollment

According to a story from epidermolysisbullosanews.com, the biotechnology company TWi Biotechnology, Inc., recently announced that is has begun enrollment for its Phase 2 trial. This trial will test the company's…

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Two Companies are Collaborating to Develop an Investigational Drug for Epidermolysis Bullosa
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Two Companies are Collaborating to Develop an Investigational Drug for Epidermolysis Bullosa

Two companies, GtreeBNT and YuYang DNU, will collaborate in a joint venture to develop the investigational drug RGN-137 for the treatment of epidermolysis bullosa. For more details, you can read…

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A Drug Being Developed to Treat Epidermolysis Bullosa Has Been Granted Orphan Drug Status
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A Drug Being Developed to Treat Epidermolysis Bullosa Has Been Granted Orphan Drug Status

The Boston-based biopharmaceutical company Berg LLC has announced that their experimental drug candidate BPM 31510 (ubidecarenone) has been awarded Orphan Drug designation by the US Food and Drug Administration (FDA)…

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Increasing Awareness Brings More Support for Rare Disease Patients
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Increasing Awareness Brings More Support for Rare Disease Patients

The National Center for Advancing Translational Sciences (NCATS) supports rare disease patients and their communities. They provide translational research funding, tools and other resources that are helping to address unique…

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Wear Socks on Your Hands to Help Little Girl with EB To Receive Bone Marrow Transplant
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Wear Socks on Your Hands to Help Little Girl with EB To Receive Bone Marrow Transplant

While she's constantly smiling and full of energy, little girl Makenzie Cadmus struggles with a rare condition known as epidermolysis bullosa, reports News 12 Long Island. The rare disease has…

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Osteoarthritis Medicine May Offer Hope for Butterfly Children with EBS-DM
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Osteoarthritis Medicine May Offer Hope for Butterfly Children with EBS-DM

Epidermolysis bullosa (EB) is a rare disorder, in which a genetic mutation disrupts the production of a protein that holds the skin together. This creates intense and painful blistering externally,…

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