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You’ll Definitely Be Inspired at This Rare Disease Event!

You’ll Definitely Be Inspired at This Rare Disease Event!

  • Post author:Sarah Lau
  • Post published:August 14, 2017
  • Post category:Rare Disease

Global Genes is hosting its annual Tribute to Champions of Hope event for the rare disease community. Here's all you need to know about it: What: A blue-tie cocktail hour and dinner event…

Continue Reading You’ll Definitely Be Inspired at This Rare Disease Event!
You Won’t Want to Miss This Hallmark Rare Disease Event!

You Won’t Want to Miss This Hallmark Rare Disease Event!

  • Post author:Sarah Lau
  • Post published:August 8, 2017
  • Post category:Rare Disease

Global Genes is hosting its 6th Annual RARE Patient Advocacy Summit for the rare disease community! Here's all you need to know about it, and why you won't want to miss it:…

Continue Reading You Won’t Want to Miss This Hallmark Rare Disease Event!
The Seattle Rare Disease Fair was a Blooming Success!
https://pixabay.com/en/seattle-washington-city-state-3465797/

The Seattle Rare Disease Fair was a Blooming Success!

  • Post author:Trudy Horsting
  • Post published:June 12, 2017
  • Post category:Pfeiffer Syndrome/Rare Disease

The First Ever Seattle Rare Disease Fair happened on June 3rd, 2017. And it was a BLOOMING success. The goal of the event was to spread awareness of rare disease…

Continue Reading The Seattle Rare Disease Fair was a Blooming Success!
3000-Mile Trek Across US for Fabry Awareness
Source: www.pixabay.com

3000-Mile Trek Across US for Fabry Awareness

  • Post author:Al Pendleton
  • Post published:February 23, 2017
  • Post category:Fabry Disease/Rare Disease

One of my favorite scenes from Forrest Gump was the titular main character running across the United States. He got all kinds of press, as well as masses of people…

Continue Reading 3000-Mile Trek Across US for Fabry Awareness
Asista al Global Genes Patient Advocacy Summit desde su sofá!
Pixabay

Asista al Global Genes Patient Advocacy Summit desde su sofá!

  • Post author:Patient Worthy Contributor
  • Post published:October 5, 2016
  • Post category:Rare Disease

Gracias a Dios por el siglo 21! Si usted ha estado muriendo para asistir a la Cumbre de Apoyo al Paciente de de Global Genes en California, pero no hay manera de que…

Continue Reading Asista al Global Genes Patient Advocacy Summit desde su sofá!
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