The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour

RARE on the Road: a Rare Disease Leadership Tour March 28th, 2020 Minneapolis, MN The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates,…

Continue Reading The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour

The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour

RARE on the Road: a Rare Disease Leadership Tour April 17th, 2020 Burlingame, CA The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates,…

Continue Reading The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour

The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour

RARE on the Road: a Rare Disease Leadership Tour May 30th, 2020 Raleigh, NC The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates,…

Continue Reading The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour

2019 Global Genes Rare Patient Advocacy Summit Highlights: Part One

The 2019 Global Genes Rare Patient Advocacy Summit was filled with incredible presentations that highlighted steps for progress in research and advocacy organization, provided solidarity for the rare community, and…

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