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Huntington’s and Hope: Seth’s Story, Part 1

Huntington’s and Hope: Seth’s Story, Part 1

  • Post author:Rebekah
  • Post published:December 28, 2018
  • Post category:Huntington's Disease/Rare Disease/Timely

When Seth was twelve years old, he and the rest of his family began to realize something was wrong with his mother. Seth can remember conversing with her pleasantly, and…

Continue Reading Huntington’s and Hope: Seth’s Story, Part 1
Ewe Wool be Surprised by the Animal that May Hold the Key for Huntington’s Treatment
Source: Pixabay

Ewe Wool be Surprised by the Animal that May Hold the Key for Huntington’s Treatment

  • Post author:Patient Worthy Contributor
  • Post published:December 11, 2017
  • Post category:Huntington's disease/Rare Disease

Whenever I was looking for something I had lost as a kid, my mom would offer the same, unhelpful advice: It'll show up in the last place you look for…

Continue Reading Ewe Wool be Surprised by the Animal that May Hold the Key for Huntington’s Treatment
Hope for Huntington’s Disease with a New Treatment in the Pipeline

Hope for Huntington’s Disease with a New Treatment in the Pipeline

  • Post author:Erica Zahn
  • Post published:November 15, 2016
  • Post category:Huntington's disease/Rare Disease

When most people visualize Huntington's disease, a fatal neurological disease that causes the nerve cells in the brain to break down, the first thing that may come to mind is…

Continue Reading Hope for Huntington’s Disease with a New Treatment in the Pipeline
S.O.S. for HD Advice: How to Convince Families to Get Support
[Source: Pixabay.com]

S.O.S. for HD Advice: How to Convince Families to Get Support

  • Post author:Alisha Stone
  • Post published:November 2, 2016
  • Post category:Huntington's disease/Rare Disease

After talking on the phone with some of my family members, I felt a range of emotions from anger and frustration to guilt and sadness. It breaks my heart because…

Continue Reading S.O.S. for HD Advice: How to Convince Families to Get Support
What New Hope is Coming for Huntington’s Patients?
Source: pexels.com

What New Hope is Coming for Huntington’s Patients?

  • Post author:Erica Zahn
  • Post published:October 24, 2016
  • Post category:Huntington's disease/Rare Disease

Approximately one in 15,000 people have a defect in their HTT gene and the outcome of that defect is ultimately life-ending. It's called Huntington's disease, or HD, and the average…

Continue Reading What New Hope is Coming for Huntington’s Patients?
Why Light Therapy Is The Best Therapy For HD
Pixabay

Why Light Therapy Is The Best Therapy For HD

  • Post author:Farrah Fontaine
  • Post published:August 1, 2016
  • Post category:Huntington's disease/Rare Disease

Could slowing the progression of Huntington's Disease (HD) be as simple as using a really bright light? Not quite. That's an oversimplification, but let's break it down. In April, researchers…

Continue Reading Why Light Therapy Is The Best Therapy For HD
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