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HLHS

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Help This Family Whose Daughter Has HLHS
https://pixabay.com/en/book-book-gift-heart-gift-read-1760998/

Help This Family Whose Daughter Has HLHS

  • Post author:Jessica Lynn
  • Post published:July 29, 2023
  • Post category:hypoplastic left heart syndrome

  If your child was sick, you’d do everything that you could to save them.  Hayley Moore is no different. When her daughter Klarissa was born, Moore felt such a…

Continue Reading Help This Family Whose Daughter Has HLHS
Andrew’s Story: A Heart Transplant to Treat Hypoplastic Left Heart Syndrome

Andrew’s Story: A Heart Transplant to Treat Hypoplastic Left Heart Syndrome

  • Post author:Kendall Mason
  • Post published:June 17, 2022
  • Post category:hypoplastic left heart syndrome

Andrew is a pretty tough kid - he had already undergone four open heart surgeries by the time he was three years old. Now, at age 21, he's added two…

Continue Reading Andrew’s Story: A Heart Transplant to Treat Hypoplastic Left Heart Syndrome
Lomecel-B for HLHS Earns Orphan Drug Status
source: pixabay.com

Lomecel-B for HLHS Earns Orphan Drug Status

  • Post author:Jessica Lynn
  • Post published:December 14, 2021
  • Post category:hypoplastic left heart syndrome

On December 6, 2021, biotechnology company Longeveron Inc. ("Longeveron") announced that its investigational therapeutic candidate Lomecel-B earned Orphan Drug designation from the FDA. The therapy is designed to treat patients…

Continue Reading Lomecel-B for HLHS Earns Orphan Drug Status
Family Needs Help After $10k for Boy’s HLHS Surgery Stolen
https://pixabay.com/en/heart-heartbreak-love-break-broken-34655/

Family Needs Help After $10k for Boy’s HLHS Surgery Stolen

  • Post author:Jessica Lynn
  • Post published:June 15, 2021
  • Post category:hypoplastic left heart syndrome

At just four years old, Gabriel Spiro is facing his 3rd open-heart surgery. You see, Gabriel was born with hypoplastic left heart syndrome (HLHS), a rare and severe congenital heart…

Continue Reading Family Needs Help After $10k for Boy’s HLHS Surgery Stolen
Compassionate Use: Lomecel-B Approved for HLHS
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Compassionate Use: Lomecel-B Approved for HLHS

  • Post author:Jessica Lynn
  • Post published:March 19, 2021
  • Post category:hypoplastic left heart syndrome

  In March 2021, the FDA expanded access approval to biotechnology company Longeveron Inc.'s investigational Lomecel-B to a pediatric patient with hypoplastic left heart syndrome (HLHS). According to a press…

Continue Reading Compassionate Use: Lomecel-B Approved for HLHS
Pakistani Family Granted Indian Medical Visas That Saved Their Baby
Source: Pixabay

Pakistani Family Granted Indian Medical Visas That Saved Their Baby

  • Post author:Meagan Fulps
  • Post published:January 11, 2018
  • Post category:hypoplastic left heart syndrome/Rare Disease

5-month-old baby, Rohaan's, life was spared when he recently underwent surgery to treat his rare congenital heart condition, surgery that almost didn't happen, reported Times Of India. His parents, Muhammad…

Continue Reading Pakistani Family Granted Indian Medical Visas That Saved Their Baby
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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