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Parents Play a Vital Role in the Struggle Against Rare Disease
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Parents Play a Vital Role in the Struggle Against Rare Disease

  • Post author:James Moore
  • Post published:February 8, 2023
  • Post category:CTNNB1 syndrome/Rare Disease/SYNGAP1-related intellectual disability

The number of identified rare diseases continues to climb every year, with the number recently reaching the 11,000+ mark. Some of them have only a handful of identified cases, and…

Continue Reading Parents Play a Vital Role in the Struggle Against Rare Disease
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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