Marfan Foundation – Patient Worthy

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Rare Community Profiles: How Two Participants Found Connection and Support at the Marfan Foundation’s 2024 Global Virtual Conference

Post author:Jessica Lynn
Post published:August 27, 2024
Post category:Loeys-Dietz syndrome Marfan Syndrome

Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

February is Marfan Syndrome Awareness Month!

Post author:Trudy Horsting
Post published:February 15, 2022
Post category:Marfan Syndrome

The Marfan Foundation has a mission to improve the quality of life for patients living with Marfan syndrome and other aortic and vascular conditions. This month, in honor of Marfan Syndrome…

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On July 1, the Marfan Foundation and Loeys-Dietz Syndrome Foundation Will Officially Partner Up

Post author:Jessica Lynn
Post published:June 12, 2020
Post category:Loeys-Dietz syndrome Marfan Syndrome Timely

Education, research, support, and patient advocacy: these are just four of the amazing things that rare disease or disorder foundations offer. Many foundations seek to offer programs and resources to…

Source: Pixabay

Family Spreads Awareness for Son and Others with Marfan Syndrome

Post author:Samuel Sachs
Post published:June 26, 2018
Post category:Marfan Syndrome

The birth of a child can be one of the defining moments for a couple. It’s a milestone of that brings with it a series of surprises and lifestyle changes…

Rare Community Profiles: How Two Participants Found Connection and Support at the Marfan Foundation’s 2024 Global Virtual Conference

February is Marfan Syndrome Awareness Month!

On July 1, the Marfan Foundation and Loeys-Dietz Syndrome Foundation Will Officially Partner Up

Family Spreads Awareness for Son and Others with Marfan Syndrome

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