Patients With Marfan Syndrome Associated with an Aortic Aneurysm or Dissection Prove to Have a Higher Risk of Periodontal Disease

  According to a recent article, the results of a new study shows that patients that are diagnosed with Marfan syndrome and an aortic aneurysm or dissection are at a…

Continue Reading Patients With Marfan Syndrome Associated with an Aortic Aneurysm or Dissection Prove to Have a Higher Risk of Periodontal Disease
Scares That Care Virtual Charity Event Supporting Marfan Syndrome Patient to Take Place August 1st
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Scares That Care Virtual Charity Event Supporting Marfan Syndrome Patient to Take Place August 1st

Scares That Care Scares That Care is a 501(c)(3) organization, first established in 2007 by Joe Ripple, dedicated to fighting the "monsters" of childhood illnesses, breast cancer, and burns. They support…

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On July 1, the Marfan Foundation and Loeys-Dietz Syndrome Foundation Will Officially Partner Up
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On July 1, the Marfan Foundation and Loeys-Dietz Syndrome Foundation Will Officially Partner Up

Education, research, support, and patient advocacy: these are just four of the amazing things that rare disease or disorder foundations offer. Many foundations seek to offer programs and resources to…

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Study to Investigate the Development of Lung Disease in Connective Tissue Disorders
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Study to Investigate the Development of Lung Disease in Connective Tissue Disorders

A study record from clinicaltrials.gov is investigating the appearance of lung problems in patients with disorders affecting connective tissue. While prior research has documented the appearance of interstitial lung disease…

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