This Marfan Syndrome Patient Received a Successful Full Dental Prosthesis
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This Marfan Syndrome Patient Received a Successful Full Dental Prosthesis

A recent report has documented a positive case study of a potential treatment option for one of the complications Marfan syndrome can cause. This report was published in the Journal of Oral Implantology. …

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Study to Investigate the Development of Lung Disease in Connective Tissue Disorders
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Study to Investigate the Development of Lung Disease in Connective Tissue Disorders

A study record from clinicaltrials.gov is investigating the appearance of lung problems in patients with disorders affecting connective tissue. While prior research has documented the appearance of interstitial lung disease…

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Marfan and Ehlers-Danlos Patients May Want to Avoid This Class of Antibiotics
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Marfan and Ehlers-Danlos Patients May Want to Avoid This Class of Antibiotics

According to a story from WebMD, the US Food and Drug Administration recently issued a warning about a class of antibiotic drugs called fluoroquinolones. They have been linked to an…

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The Marfan Foundation and Backpack Health Have Teamed up to Create a New Patient Registry
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The Marfan Foundation and Backpack Health Have Teamed up to Create a New Patient Registry

According to a story from PR Newswire, The Marfan Foundation and Backpack Health are partnering so that the foundation can begin the creation of a patient registry for people affected…

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How Many of these Celebrities with Rare Diseases Can You Name?
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How Many of these Celebrities with Rare Diseases Can You Name?

If you have a rare disease, chances are, sometimes you feel all alone in your experience. When you look around, there are people all over the world fighting similar battles.…

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Do You Know the Signs of Marfan Syndrome? 50% of People with this Potentially Fatal Disease Don’t.
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Do You Know the Signs of Marfan Syndrome? 50% of People with this Potentially Fatal Disease Don’t.

Some people with Marfan syndrome look the part. They may be unusually flexible, with long arms, legs, and fingers, and a tall, willowy build. Some patients have scoliosis, crowded teeth,…

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