Correlation Between Marfan Syndrome and Pregnancy Related Arterial Dissections
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Correlation Between Marfan Syndrome and Pregnancy Related Arterial Dissections

Arterial Dissection Arterial dissections refer to the tearing of the inner wall of an artery. Pregnancy creates stress on the body's blood vessels and in rare cases dissections can occur.…

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Phase 2 Trial Announced for Potential COVID-19 Treatment TXA127
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Phase 2 Trial Announced for Potential COVID-19 Treatment TXA127

  As COVID-19 continues to spread, the rush for a treatment or cure continues. Today, on August 4, there are 18.2 million diagnosed cases worldwide, with an associated 692,000 deaths.…

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Scares That Care Virtual Charity Event Supporting Marfan Syndrome Patient to Take Place August 1st
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Scares That Care Virtual Charity Event Supporting Marfan Syndrome Patient to Take Place August 1st

Scares That Care Scares That Care is a 501(c)(3) organization, first established in 2007 by Joe Ripple, dedicated to fighting the "monsters" of childhood illnesses, breast cancer, and burns. They support…

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On July 1, the Marfan Foundation and Loeys-Dietz Syndrome Foundation Will Officially Partner Up
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On July 1, the Marfan Foundation and Loeys-Dietz Syndrome Foundation Will Officially Partner Up

Education, research, support, and patient advocacy: these are just four of the amazing things that rare disease or disorder foundations offer. Many foundations seek to offer programs and resources to…

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This Marfan Syndrome Patient Received a Successful Full Dental Prosthesis
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This Marfan Syndrome Patient Received a Successful Full Dental Prosthesis

A recent report has documented a positive case study of a potential treatment option for one of the complications Marfan syndrome can cause. This report was published in the Journal of Oral Implantology. …

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Study to Investigate the Development of Lung Disease in Connective Tissue Disorders
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Study to Investigate the Development of Lung Disease in Connective Tissue Disorders

A study record from clinicaltrials.gov is investigating the appearance of lung problems in patients with disorders affecting connective tissue. While prior research has documented the appearance of interstitial lung disease…

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Marfan and Ehlers-Danlos Patients May Want to Avoid This Class of Antibiotics
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Marfan and Ehlers-Danlos Patients May Want to Avoid This Class of Antibiotics

According to a story from WebMD, the US Food and Drug Administration recently issued a warning about a class of antibiotic drugs called fluoroquinolones. They have been linked to an…

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This Drug Could Reduce The Danger of a Potentially Lethal Complication of Marfan Syndrome
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This Drug Could Reduce The Danger of a Potentially Lethal Complication of Marfan Syndrome

According to a story from Healio, a recent study found that irbesartan, marketed under the name Avapro, can help reduce the rate at which the aorta, the largest blood vessel…

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The Marfan Foundation and Backpack Health Have Teamed up to Create a New Patient Registry
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The Marfan Foundation and Backpack Health Have Teamed up to Create a New Patient Registry

According to a story from PR Newswire, The Marfan Foundation and Backpack Health are partnering so that the foundation can begin the creation of a patient registry for people affected…

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How Many of these Celebrities with Rare Diseases Can You Name?
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How Many of these Celebrities with Rare Diseases Can You Name?

If you have a rare disease, chances are, sometimes you feel all alone in your experience. When you look around, there are people all over the world fighting similar battles.…

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Do You Know the Signs of Marfan Syndrome? 50% of People with this Potentially Fatal Disease Don’t.
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Do You Know the Signs of Marfan Syndrome? 50% of People with this Potentially Fatal Disease Don’t.

Some people with Marfan syndrome look the part. They may be unusually flexible, with long arms, legs, and fingers, and a tall, willowy build. Some patients have scoliosis, crowded teeth,…

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