Rare Community Profiles: How Kenzi is Navigating the Challenges of MCTD, FCAS, and Medical PTSD
source: pixabay.com

Rare Community Profiles: How Kenzi is Navigating the Challenges of MCTD, FCAS, and Medical PTSD

  Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

Continue Reading Rare Community Profiles: How Kenzi is Navigating the Challenges of MCTD, FCAS, and Medical PTSD

Chronic Illness, COVID-19, and Creative Writing: Discussing “Disposed: A Story of Chronic Illness During the COVID-19 Pandemic” with Dan Pezzetta (Pt. 1)

At 22 years old, Dan Pezzetta is carving out a name for himself in the chronic illness sphere. When he was born, Dan was diagnosed with aortic stenosis. Although intervention…

Continue Reading Chronic Illness, COVID-19, and Creative Writing: Discussing “Disposed: A Story of Chronic Illness During the COVID-19 Pandemic” with Dan Pezzetta (Pt. 1)