Rare Community Profiles Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…
Rare disease patients spend an average of eight years searching for a diagnosis, and for some, that search can last decades. April Hudson of Quinton, Ala., began showing symptoms of…
Cameron Dixon is a 17-year-old boy living with muscular dystrophy. His family was first told that he would most likely never be able to walk, eat, or talk, and that…
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