neuromuscular disease foundation

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Join the Neuromuscular Disease Foundation’s #RareReality Campaign

Post author:Jean Martell
Post published:February 27, 2018
Post category:GNE Myopathy Rare Disease

Tomorrow is Rare Disease Day! There are 7,000 rare diseases and disorders that affect about 30 million Americans. Three hundred million worldwide are affected by rare diseases and 95% of those…

CLICK HERE TO SHARE YOUR STORY!

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Join the Neuromuscular Disease Foundation’s #RareReality Campaign

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