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October

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October is Gaucher Disease Awareness Month!

October is Gaucher Disease Awareness Month!

  • Post author:Jean Martell
  • Post published:October 1, 2019
  • Post category:Gaucher Disease

October is Gaucher Disease Awareness Month! The National Gaucher Foundation (NGF) has some wonderful resources that can come in handy for the Gaucher patient community. Let's take a look below!…

Continue Reading October is Gaucher Disease Awareness Month!

Connect with Kabuki Syndrome Advocates During Awareness Month!

  • Post author:Jean Martell
  • Post published:October 16, 2018
  • Post category:Kabuki Syndrome

October is Kabuki Syndrome Awareness Month! And it's important to connect with other people in the community; there's always strength in numbers. So let's learn a little more about Kabuki syndrome…

Continue Reading Connect with Kabuki Syndrome Advocates During Awareness Month!
Sign Petition in Support of Trigeminal Neuralgia Research
Source: Pixabay

Sign Petition in Support of Trigeminal Neuralgia Research

  • Post author:Jean Martell
  • Post published:October 9, 2018
  • Post category:Rare Disease

October is Trigeminal Neuralgia Awareness Month! One way you can honor this month is by signing TNnME: Intl Trigeminal Neuralgia and Me's petition for the World Health Organization (WHO) to add Trigeminal Neuralgia…

Continue Reading Sign Petition in Support of Trigeminal Neuralgia Research
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney Cancerhttps://patientworthy.com/2026/01/20/finding-strength-together-scott-and-katies-journey-with-advanced-kidney-cancer/
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
Read Full Story Here
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