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Once Upon a Gene

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The Story of Rory – Life and Death with CTNNB1 Syndrome

The Story of Rory – Life and Death with CTNNB1 Syndrome

  • Post author:Patient Worthy Contributor
  • Post published:April 18, 2025
  • Post category:CTNNB1 syndrome

This is Rachel Heilmann's story - This is about how grief can fuel action, and why the smartest innovators are the ones with nothing left to lose and everything left…

Continue Reading The Story of Rory – Life and Death with CTNNB1 Syndrome
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