European Study Demonstrates Need for Faster Diagnosis and Improved Counseling for Pulmonary Fibrosis Patients

A recent study has uncovered just how many people with pulmonary fibrosis (PF) do not receive an immediate diagnosis. This study conducted in Europe was published in Frontiers of Medicine.…

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Presentations at the ATS Conference Demonstrate the Value of the Pulmonary Fibrosis Foundation’s Patient Registry

At the 2019 American Thoracic Society Conference this year multiple presentations demonstrated the importance of the Pulmonary Fibrosis Foundation's Patient Registry. About the Registry This registry was created by the Pulmonary…

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Positive Results from Phase 2 Trial Could Lead to Lower Doses of Corticosteroids for Pemphigus Patients

Pemphigus Pemphigus is a rare autoimmune condition which causes the skin to blister. There are two main forms of the disease called pemphigus foliaceus (PF) and pemphigus vulgaris (PV). Pemphigus…

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Empowering Patients and Accelerating Research: It’s Everyone’s Goal in the Rare Community
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Empowering Patients and Accelerating Research: It’s Everyone’s Goal in the Rare Community

The Pulmonary Fibrosis Warriors (PF Warriors) and monARC Bionetworks teamed up today to host a Facebook Live video, sharing important information about how patients can become more involved in research…

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