Support Groups Need Support, Too! Check Out This Funding Source for Idiopathic Pulmonary Fibrosis Groups
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Support Groups Need Support, Too! Check Out This Funding Source for Idiopathic Pulmonary Fibrosis Groups

For the estimated 100,000 to 200,000 people in the US diagnosed with idiopathic pulmonary fibrosis (IPF), finding a community is important. IPF is a rare lung disease, which you can…

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Living with Pulmonary Fibrosis? There’s an App for That!
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Living with Pulmonary Fibrosis? There’s an App for That!

MonARC Bionetworks and the Pulmonary Fibrosis Foundation have partnered to bring the IPF community the PF Health app - a monumental partnership that will bring clinical research opportunities directly to…

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Survey Says: European Doctors Need to Learn More About Idiopathic Pulmonary Fibrosis Treatment
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Survey Says: European Doctors Need to Learn More About Idiopathic Pulmonary Fibrosis Treatment

If there was a proven medication to slow the progress of a chronic and deadly lung disease with no cure, why wouldn't you take it? That's the question that researchers…

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Have Idiopathic Pulmonary Fibrosis? Experts Recommend High-Dose Flu Vaccine this Winter
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Have Idiopathic Pulmonary Fibrosis? Experts Recommend High-Dose Flu Vaccine this Winter

Getting a cold or flu is bad enough for most "healthy" people, but if you have a progressive, incurable lung disease, such as idiopathic pulmonary fibrosis (IPF), cystic fibrosis, COPD,…

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A Path Leads to an IPF Breakthrough: British Scientists Discover Lung Fibrosis Gene
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A Path Leads to an IPF Breakthrough: British Scientists Discover Lung Fibrosis Gene

Health scientists at the University of Leicester and University of Nottingham have heralded the discovery of a gene associated with lung fibrosis, such as idiopathic pulmonary fibrosis (IPF), as "a…

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Oklahoma Researchers May Have the Missing Link to Pulmonary Fibrosis
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Oklahoma Researchers May Have the Missing Link to Pulmonary Fibrosis

When it comes to treating a chronic and serious disease like idiopathic pulmonary fibrosis (IPF), sometimes you have to fight fire with fire. Or, as in this case micro fibrosis…

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Could You Be Saved By a Scan? How You Can Detect and Catch the #1 Killer During Healthy Lung Month
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Could You Be Saved By a Scan? How You Can Detect and Catch the #1 Killer During Healthy Lung Month

They look perfectly healthy. There's no outward sign of disease. But for millions of Americans, chronic and debilitating conditions such as idiopathic pulmonary fibrosis (IPF) could be lurking inside. October…

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Researchers Target a Cure for Cystic Fibrosis, IPF, and Other Chronic Lung Diseases
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Researchers Target a Cure for Cystic Fibrosis, IPF, and Other Chronic Lung Diseases

Researchers who study rare diseases often look at what's going wrong in the body in order to find a treatment. But the team studying rare lung diseases at the Perelman School…

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ICYMI: People with IPF May Breathe Easier with New Stem Cell Treatment
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ICYMI: People with IPF May Breathe Easier with New Stem Cell Treatment

If you or someone you love has been diagnosed with idiopathic pulmonary fibrosis (IPF), it's easy to become discouraged by the lack of medical options. Although almost 50,000 people a…

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This New Method for Obtaining Stem Cells Could Benefit Cystic Fibrosis Patients
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This New Method for Obtaining Stem Cells Could Benefit Cystic Fibrosis Patients

In a study at the University of North Carolina (Chapel Hill), researchers found that there may be a much more effective new way to isolate lung stem cells in order…

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New Research Suggests Stem Cell Therapy Could Cure Lung Fibrosis Diseases
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New Research Suggests Stem Cell Therapy Could Cure Lung Fibrosis Diseases

A North Carolina-based research group has just developed research that indicates a potential stem cell treatment for lung fibrosis conditions such as cystic fibrosis (CF) and idiopathic pulmonary fibrosis (IPF).…

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Editor’s Choice: Survivor Status and Orphan Status are Both Good Signs in the Rare Disease World

Happy Friday! This week, we have a story that might break your heart about a woman who battled cystic fibrosis. But we also have a story that might inspire you about a…

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Amazing Research Uncovered: Guess What These Scientists are Doing for IPF

Most people take breathing for granted — until the ability to breathe is impaired. People with idiopathic pulmonary fibrosis (IPF) know this all too well. Without the ability to readily…

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Editor’s Choice: Exciting New Tools and Devices to Help Rare Disease

Welcome Back to Editor's Choice! The end of the week is finally here, and we have some reading material for you. First, we have an awesome story of a CF…

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Editor’s Choice: It’s Junvenile Arthritis Awareness Month!

Happy Friday! How's the the sweltering heat treating you all (if you're on the east coast of the US, that is)? Hoping you are keeping cool! In the meantime, check out…

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A New Discovery Could Change the Future of IPF Treatments
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A New Discovery Could Change the Future of IPF Treatments

Researchers have just found some really exciting information that will be crucial in the development of idiopathic pulmonary fibrosis (IPF) treatments from here on out. Scientists at Northwestern Medicine have…

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