Tayla Udall from Essex, England, is used to finding her four-year-old son rummaging through leftovers in the kitchen because of his rare disease of perpetual hunger. Frankie suffers from Prader-Willi…
In Tecoman, Colima, western Mexico, Luis Manuel is now a ten month old baby, but he weighs as much as a nine-year-old. Luis Manuel tops the scales at 66 pounds,…
We live in a world of over 7000 rare diseases, but perhaps one of the rarest with the most unusual of symptoms is Prader-Willi Syndrome. This genetic disorder affects one…
It's been a great year for the Los Angeles Dodgers. Their loyal fans are eagerly awaiting their first World Series play in 29 years on October 24th. One loyal Dodgers…
One year old Evan Brenneman will have to live with hunger his entire life. Not because he's homeless or poor, but because Evan was born with Prader-Willi syndrome (PWS). This…
Soleno Therapeutics, Inc. of Capnia reported in early July of this year that the company plans to start a Phase 3 clinical trial for evaluating diazoxide choline controlled-release (DCCR) in…
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