We live in a world of over 7000 rare diseases, but perhaps one of the rarest with the most unusual of symptoms is Prader-Willi Syndrome.
This genetic disorder affects one in 10,000 people and is the leading cause of genetic obesity. Why is this? Because people who suffer from PWS don’t know what it’s like to feel full. Because of developmental delays that spring fourth during childhood, children begin to overeat because of the unsatisfying sense of hunger. No matter how much they eat, it will never fill their insatiable cravings. On top of obesity, type 2 diabetes is common among PWS patients. To learn more, click here.
As it stands, there is no cure for PWS. In order to treat it, parents have to adhere to strict diets for their children, keeping a balanced and hearty meal plan.
The Tennessee Prader-Willi Association is trying to raise awareness for PWS by hosting an “On the Move” walk on October 28th, 2017 at Granny White Park in Brentwood, TN. Walkers will be met at the finish line with healthy snacks and grilled cheeses along with speeches from the local doctors from Monroe Carell Jr. Children’s Hospital at Vanderbilt.
If participants raise $50 or more, they get a t-shirt. The walk is totally free to attend. In order to register or donate to the cause, click here.
Dr. Jessica Duis is among the many researchers at the hospital who are working tirelessly with the Prader-Willi Syndrome Association USA and the Foundation for Prader-Willi Research to support PWS victims and search for a potential cure.
As part of this effort, Dr. Duis operates a multidisciplinary clinic that uses cutting edge treatments and care toward PWS individuals.
