Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

primary immundeficiency

  1. Home>
  2. primary immundeficiency

San Antonio, TX Live Event: Primary Immunodeficiency Patient Speaker Program

  • Post author:James Moore
  • Post published:October 24, 2019
  • Post category:

Speakers: Dawn Helfrich RN, MSN, APN Angela Kontas To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…

Continue Reading San Antonio, TX Live Event: Primary Immunodeficiency Patient Speaker Program
A Girl From South Africa Faces Primary Immunodeficiency
mzgiaconte / Pixabay

A Girl From South Africa Faces Primary Immunodeficiency

  • Post author:James Moore
  • Post published:October 23, 2019
  • Post category:Bronchiectasis/Primary Immunodeficiency

According to a story from peoplemagazine.co.za, Kasandra van Alphen is an eight year old girl from Johannesburg, South Africa that was diagnosed with primary immunodeficiency. Known by her friends and…

Continue Reading A Girl From South Africa Faces Primary Immunodeficiency

St. Petersburg, FL Live Event: Primary Immunodeficiency Patient Speaker Program

  • Post author:James Moore
  • Post published:October 10, 2019
  • Post category:

Speakers: Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN Carl Schlacht To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to…

Continue Reading St. Petersburg, FL Live Event: Primary Immunodeficiency Patient Speaker Program

Holyoke, MA Live Event: Primary Immunodeficiency Patient Speaker Program

  • Post author:James Moore
  • Post published:October 10, 2019
  • Post category:

Speakers: Darlene Madore MSN, APRN, CPNP-PC, BSN, RN Annette Gregory To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to…

Continue Reading Holyoke, MA Live Event: Primary Immunodeficiency Patient Speaker Program

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info