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rare disease drug development

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La perspectiva del paciente es digna de los oídos de la industria

La perspectiva del paciente es digna de los oídos de la industria

  • Post author:Patient Worthy Contributor
  • Post published:October 21, 2016
  • Post category:Rare Disease

Patient Worthy asistió al foro anual de la Fundación EveryLife el pasado martes en Washington, DC. Fue un taller de un día completo acerca de por qué la incorporación de…

Continue Reading La perspectiva del paciente es digna de los oídos de la industria

Las perspectivas de pacientes son cruciales para la industria

  • Post author:Patient Worthy Contributor
  • Post published:March 9, 2016
  • Post category:Rare Disease

Patient Worthy asistió al foro anual organizada por la Fundación EveryLife este pasado martes en Washington, DC. Fue un taller de día completo acerca de por qué la incorporación de…

Continue Reading Las perspectivas de pacientes son cruciales para la industria
The FDA Just Gained Big Brownie Points from Rare Disease Patients

The FDA Just Gained Big Brownie Points from Rare Disease Patients

  • Post author:Winnie Nash
  • Post published:October 22, 2015
  • Post category:Rare Disease

Earlier this year, the FDA took bold steps, launching them closer to efficient rare disease drug development. And now, the potential improvement for rare disease patients could be huge. Why?…

Continue Reading The FDA Just Gained Big Brownie Points from Rare Disease Patients

Why Patient Perspective is Worthy of Industry Ears

  • Post author:Patient Worthy Contributor
  • Post published:September 19, 2015
  • Post category:Rare Disease

Patient Worthy attended the EveryLife Foundation’s  annual forum this past Tuesday in Washington, DC. It was a full day workshop about why incorporating the patient perspective into the various phases of developing drugs…

Continue Reading Why Patient Perspective is Worthy of Industry Ears
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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