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Rare Disease Week 2020

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Rare Disease Week 2020: Working Towards a Better Future
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Rare Disease Week 2020: Working Towards a Better Future

  • Post author:James Moore
  • Post published:March 6, 2020
  • Post category:Fibrodysplasia Ossificans Progressiva (FOP)/Rare Disease

This year, the entire Patient Worthy team traveled up to Washington, DC for Rare Disease Week 2020. This event is always a big one for the rare disease patient community.…

Continue Reading Rare Disease Week 2020: Working Towards a Better Future
In February, Rare Disease Week Will Take Over Capitol Hill. They Want You Come Tell Your Story.

In February, Rare Disease Week Will Take Over Capitol Hill. They Want You Come Tell Your Story.

  • Post author:Sunniva Bean
  • Post published:January 8, 2020
  • Post category:Rare Disease

Who is most affected when we talk about creating solutions for rare diseases? Those who live with them and their families. Patient communities know what they need and feel the…

Continue Reading In February, Rare Disease Week Will Take Over Capitol Hill. They Want You Come Tell Your Story.
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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