RARE2019 – Patient Worthy

The Major Ethical Dilemma Behind Rare Disease Drug Costs and a Bioethicist’s Solution

Post author:Trudy Horsting
Post published:March 13, 2019
Post category:Batten Disease Spinal Muscular Atrophy

Avraham Steinberg recently spoke at RARE2019, the 2nd International Congress on Advanced Treatments in Rare Diseases. It was held on March 4th and 5th in Vienna, Austria. His talk focused…

RARE2019 Conference to Take Place this Week in Austria

Post author:Trudy Horsting
Post published:February 26, 2019
Post category:Gaucher Disease Spinal Muscular Atrophy Timely

Second Annual International Congress on Advanced Treatments in Rare Diseases The first International Congress on Advanced Treatments in Rare Diseases, otherwise known as RARE2018, was held in London, England. Now,…

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