Her Brother Participated in Trials for Vital Spinal Muscular Atrophy Drug, and Now She’s Denied Treatment Access
<a href="https://pixabay.com/users/multifacetedgirl/">multifacetedgirl</a> / Pixabay

Her Brother Participated in Trials for Vital Spinal Muscular Atrophy Drug, and Now She’s Denied Treatment Access

According to a story from mirror.co.uk, a five-month-old girl named Maryam Malji was diagnosed with spinal muscular atrophy, a progressive, degenerative disease that is ultimately fatal without treatment. Her brother…

Continue Reading

This Just In: India Never Implemented their Rare Disease Policy as Promised

We all got really excited last year when India implemented a new plan to benefit rare disease patients. It was called the National Rare Disease Policy. Basically, it put 12.86…

Continue Reading
Close Menu