The Child Growth Foundation (CGF) is a leading UK charity which supports families, adults, and children with rare growth conditions such as SHOX deficiency, Silver Russell Syndrome, and Sotos syndrome.…
According to a story from yahoo.com, a six year old boy with from Texas named Mason Motz recently began speaking for the first time after a visit to the dentist's…
"Learn, Network, and Bond!" This event will be an opportunity for Sotos syndrome patients and families to come together for a weekend of support, community building, and education. Additionally,…
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
