STXBP1 disorder – Patient Worthy

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STXBP1 Disorders Foundation President Charlene Son Rigby on the First White House Rare Disease Forum

Post author:James Moore
Post published:May 15, 2024
Post category:STXBP1 disorders

On February 28th, 2024, the first-ever White House Rare Disease Forum took place. Hosted by the White House Office of Science and Technology Policy, this forum provided a platform for…

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