supravalvular aortic stenosis

The Rare Disease That Causes Extreme Friendliness and Empathy

Post author:Sunniva Bean
Post published:September 13, 2019
Post category:Rare Disease

Of all possible symptoms, four year old Alex Vasey developed one that most people don't associate with disease. As originally reported in The Daily Record, Alex’s rare genetic condition, Williams…

SHARE YOUR STORY!

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

The Rare Disease That Causes Extreme Friendliness and Empathy

Metastatic Breast Cancer: Navigating Grief

Rethinking What It Means to Live With Acromegaly

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

Let’s Work Together!

Keep Up to Date

Learn More