triathlon – Patient Worthy

Dejando atrás al ICV!

Post author:Patient Worthy Contributor
Post published:June 2, 2016
Post category:CVID Rare Disease

El corredor David Brumley fue diagnosticado con Variable Común de Inmunodeficiencia (ICV) en 2008, y pensó ponerse en forma no podría hacer su salud peor de lo que ya era.…

Outrunning CVID!

Post author:Patient Worthy Contributor
Post published:June 15, 2015
Post category:CVID Rare Disease

Runner David Brumley was diagnosed with Common Variable Immune Deficiency (CVID) in 2008, and figured getting in shape couldn't make his health any worse than it already was. He has been…

CLICK HERE TO SHARE YOUR STORY!

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Keep Up to Date

Learn More