If you visit Patient Worthy or our Facebook page then more than likely you’ve seen some incredible patient stories.
People living with a rare and chronic illness, or even one that’s just severely under-diagnosed, have shared a number of poignant, funny, and informative stories with us.
Some people want to share how they were diagnosed, others want to share what annoys them the most about their illness. Some want to share advice and some of the funny experiences that they’ve had.
Here Julie shares her experience with an organization that helped boost her daughter’s self esteem.
Here Chelsea describes the trials of dating while dealing with an undiagnosed rare disease with a humorous spin.
Here Nikole reveals the tragedies that she went through before her diagnosis.
Regardless of what disease you are living with, with what your particular story is, chances are, someone here can relate. As rare as you may be, there is probably a lot that you’ve gone through that another reader can identify with and there’s often something to be learned form each other.
If you want to share anything about your experience living with a rare disease, whether that is through your writing, an interview, or through answering prompt questions please feel free to email me at Rebekah@mypatientstory.com or click here.