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Monthly Archives: August 2015

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Fear, Frustration, Hope, Acceptance: 4 Struggles of a CVID Diagnosis

  • Post author:Patient Worthy Contributor
  • Post published:August 4, 2015
  • Post category:CVID/Primary Immunodeficiencies

Kathy Antilla recalls the moment she heard her son, Issac, say those words she thought she'd never hear: "Mom! Look at me! I'm just like a normal kid now." In…

Continue Reading Fear, Frustration, Hope, Acceptance: 4 Struggles of a CVID Diagnosis
This Dead President Lives Again Through the GLUT1 DS Community
Pixabay

This Dead President Lives Again Through the GLUT1 DS Community

  • Post author:Patient Worthy Contributor
  • Post published:August 3, 2015
  • Post category:GLUT1 DS/Rare Disease

Honest Abe’s blog, a catch-all site for video games and science, can now add rare disease champion to its description. The real Honest Abe was known and will forever be…

Continue Reading This Dead President Lives Again Through the GLUT1 DS Community

Here are 7 Yummy Things People with FH Can Actually Eat

  • Post author:James Stone
  • Post published:August 3, 2015
  • Post category:Familial Hypercholesterolemia/Homozygous Familial Hypercholesterolemia/Rare Disease

Even when your LDL cholesterol is shooting through the roof, it can still be tricky to want (and choose!) the “healthy” thing to eat. But we’ve made it easy. These…

Continue Reading Here are 7 Yummy Things People with FH Can Actually Eat
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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