2018 FH Global Summit Highlights
The 2018 FH Global Summit featured fantastic speakers, timely information, and valuable insight about the past, present and future of the way FH is understood, diagnosed, and managed. The summit…
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New Rare Diseases Have Been Added to the Patient Advocate Foundation’s Co-Pay Relief Program
The Patient Advocate Foundation has recently begun to expand the reach of its popular Co-Pay Relief program. The Co-Pay Relief program is designed to provide financial assistance to qualifying patients.…
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New Statement Released by the FH Foundation on Genetic Testing for Familial Hypercholesterolemia
According to a story from the FH Foundation, the non-profit organization has released a vital consensus statement regarding the diagnosis of familial hypercholesterolemia, which is the most prevalent genetic cause…
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New Study From The FH Foundation Will Investigate Genetic Testing of Familial Hypercholesterolemia
According to a story from Cardiovascular Business, The FH Foundation, which is a frontrunning patient advocacy and research organization for familial hypercholesterolemia, recently announced that it has begun enrollment for…
Protecting Yourself From Hyperlipidemia
A healthy diet and a good exercise regimen go a long way towards maintaining good health. When health care professionals recommend this combination they’re usually trying to keep dangerous diseases…
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Have You Heard of this Government Office Coordinating Rare Disease Research?
According to a story from Charcot Marie Tooth News, a small subdivision of the National Institutes of Health (NIH) is leaning into its role to assist with research into rare…
While still in its infancy, gene therapy offers potential treatments for a variety of illnesses, with muscular dystrophy being just one of them. Source: pixabay.com
A Lot of People With Familial Hypercholesterolemia Are Not Getting The Treatment They Need
An article from SRN News is reporting that a lot of people with familial hypercholesterolemia are going through life without getting the treatments that could help them, such as statins.…
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These Drug Companies Are Trying to Make Treatment for Familial Hypercholestrolemia More Affordable
According to a story from PR Newswire, the pharmaceutical companies Sanofi and and Regeneron Pharmaceuticals are implementing a plan to make Praluent injections more accessible and affordable for patients with…
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A Clinical Trial Changed A Patient’s Perspective on Familial Hypercholesterolemia
According to a story from the Baylor College of Medicine Blog Network, Terry Lim, a women with familial hypercholesterolemia, views her condition with a new perspective after participating in a…
5 Things You Should Know About New Familial Hypercholesterolemia Treatment
Madrigal Pharmaceuticals recently brought a new familial hypercholesterolemia drug to clinical endpoint. The drug is currently being tested as MGL-3196. Here's what you need to know about the new drug.…
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The Results of This Clinical Trial Could Be Important For Familial Hypercholesterolemia Patients
According to a story from Bioportfolio, trials testing the treatment inclisiran are reaching their enrollment goals ahead of schedule. Inclisiran is currently being tested to reduce LDL-cholesterol in a variety…
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Don’t Miss These FH Events
December and January can be busy months with all the running around and family activities. Before your calendar fills up with holiday happenings, the Familial Hypercholesterolemia Foundation (FHF) wants you…
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This Drug has Twice the Help for High Cholesterol and HeFH
It’s a fact. Lifestyle and dietary changes are an important part of the formula to help lower “bad” cholesterol numbers. Whether you add more heart-healthy foods, healthier fats, or whey…
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Put Down the Poutine! Doctors Sound Alarm about FH in Canada
Can increasing awareness and early screenings have an impact on heart health in Canada? When it comes to familial hypercholesterolemia (FH), Vancouver’s top medical advisors believe it can, according to…
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Fighting Familial Hypercholesterolemia with Food
If you think you have to be middle-aged or older to check your cholesterol, think again. Laura Livesey is a relatively young blogger (you can check out her blog, Confidence…
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One Man’s “Trash” is Another Man’s Cure for Familial Hypercholesterolemia
In the ultimate feat of recycling, scientists at UCLA and the Howard Hughes Medical Institute have re-purposed the LeXis gene as a cholesterol-lowering agent. A recent press release issued by…
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Fabulous FH Partnership is Bringing Awareness to Familial Hypercholesterolemia
How does one raise awareness? Shouting on the street corner might work for a few hundred, or maybe even a few thousand, depending on how busy the corner is that…
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What’s Stopping You from Getting the Medicine You Need?
The eternal struggle of finding a treatment that works for you is a complex and infuriating process (as evidenced by a Managed Health Executive article). Not everyone’s body responds to…
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Like Father Like Son: Managing Familial Hypercholesterolemia and Urging Others to be Tested
Only 1 in every 250 people have familial hypercholesterolemia (FH) worldwide and it is widely underdiagnosed with more than 90% of people not knowing they have it. In fact, according…
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Life Threatening Heart Attack Awakens Woman to Dangers of Under Treated FH
At 54 years of age, Kathleen was healthy and physically fit. She knew about her grandfather’s death at the age of 30 to a heart attack. She also knew about…
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Why Many FH Patients Can’t Get the New Treatment That Could Save Their Lives
Mended Hearts is a nonprofit group that helps bring hope to heart disease patients, caregivers and families. In Alabama specifically, the local Mended Hearts group had not been active for…
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A Familial Hypercholesterolemia Test You Can Do Yourself
I am a firm believer that amidst all the fads that come and go, there is one trend that will always be popular. This, of course, is the do-it-yourself craze…
Things to Know Before Familial Hypercholesterolemia Day
The Familial Hypercholesterolemia Foundation's main mission is to raise awareness of familial hypercholesterolemia (FH) to the public. As part of this goal, the FH Foundation annually hosts Familial Hypercholesterolemia Awareness…
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Better Than a Crystal Ball: This New Genetic Test Can Predict Familial Hypercholesterolemia
Acute diagnosis is the Holy Grail for all illnesses and conditions. But what if you could predict the likelihood that you would develop a deadly disease and take steps to…
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Err on the Side of Caution When It Comes to This Familial Hypercholesterolemia Treatment
According to some Finnish researchers, children with heterozygous familia hypercholesterolemia (HeFH) should use statins as a treatment with caution. Though they have proven to be able to lower lipid levels…
