FH Summit 2019 Highlights
The 2019 FH Summit was a productive and moving event that brought patients and researchers together from all over the world. Katherine A. Wilemon, founder and CEO of the FH…
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Presentation Highlights Need for Improvements in Familial Hypercholesterolemia Care
According to a story from Healio, a recent presentation featured at the FH Foundation Global Summit was a stark reminder of the need for improved treatment for patients with familial…
Amgen is Utilizing Technology to Improve Diagnosis and Adherence in Rare Disease
Diagnosis, Treatment, and Adherence There are many factors necessary for an individual to be able to thrive with a serious medical diagnosis. First, they must receive the correct diagnosis so…
New Initiative in Pennsylvania to Add Genetic Testing to Routine Care
Geisinger Health System is based out of Pennsylvania. They have recently initiated a novel program that has goals to make DNA sequencing a standard part of routine clinical care. Next…
September 24th is Familial Hypercholesterolemia Awareness Day!
September 24th is Familial Hypercholesterolemia (FH) Awareness Day! Let's take a closer look at FH, and how we can help make this day productive for the FH -- and rare…
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This Drug Could be a Breakthrough for Severe Familial Hypercholesterolemia, But How Much Will it Cost?
According to a story from Forbes, a new drug developed by the company Regeneron has the potential to make a real difference for people with the homozygous form of familial…
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When the Latest Treatments are Out of Reach, Familial Hypercholesterolemia Patients Suffer
According to a story from FHM Pakistan, a recent study revealed the familial hypercholesterolemia patients are at a greater risk of stroke, heart attack, and other cardiovascular problems when they…
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Possible Treatment for Homozygous Familial Hypercholesterolemia Earns Orphan Drug Designation
According to a story from bloomberg.com, the drug development company Arrowhead Pharmaceuticals, Inc. recently announced that its experimental product candidate AR0-ANG3 has earned Orphan Drug designation from the US Food…
National Organization for Rare Disorders Announces Ten New Grants
In honor of its 30th anniversary, the National Organization for Rare Disorders (NORD) has announced ten new grants as part of its Rare Disease Research Grant Program! NORD is the…
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Could Blood Donations Improve Diagnostic Rates for Familial Hypercholesterolemia?
According to a story from brightsurf.com, familial hypercholesterolemia, a genetic condition that causes elevated levels of LDL cholesterol to appear at a young age, often goes undiagnosed. In fact, some…
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Could This Revised Genetic Test Improve Diagnostic Rates for Familial Hypercholesterolemia?
According to a story from Healio, a recent study suggests that the addition of four more genes to the conventional genetic test used to diagnosed familial hypercholesterolemia could allow more…
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Artificial Intelligence(AI) and a Solution to Detect Familial Hypercholesterolemia
Familial Hypercholesterolemia (FH) is often misdiagnosed as plain old high cholesterol because of overlapping symptoms such as elevated lipid levels. According to a recent article in MedicalView, FH is three…
Statins May Do More Than Lower Cholesterol: They May Give IPF Drugs a Boost
New Cholesterol-Lowering Drug Could Provide Alternative to Statins
According to a publication from EurekAlert, high-cholesterol patients, who do not take statins (a type of cholesterol-lowering medication often prescribed by doctors) due to adverse side effects may benefit from…
Results From the Longest Familial Hypercholesterolemia Study to be Announced at the ACC 2019 Conference
New Research to be Presented In just a few days the American College of Cardiology will host their 68th Annual Scientific Session (ACC.19). It will be held in New Orleans,…
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Patient Centricity Helps Facilitate The Introduction of New Therapies for Rare Diseases
According to a story from Pharmaphorum, there are a number of new treatments that have been introduced or have seen major strides in development over the last year. More patient…
2018 FH Global Summit Highlights
The 2018 FH Global Summit featured fantastic speakers, timely information, and valuable insight about the past, present and future of the way FH is understood, diagnosed, and managed. The summit…
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New Rare Diseases Have Been Added to the Patient Advocate Foundation’s Co-Pay Relief Program
The Patient Advocate Foundation has recently begun to expand the reach of its popular Co-Pay Relief program. The Co-Pay Relief program is designed to provide financial assistance to qualifying patients.…
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Fighting Familial Hypercholesterolemia with Food
If you think you have to be middle-aged or older to check your cholesterol, think again. Laura Livesey is a relatively young blogger (you can check out her blog, Confidence…
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New Statement Released by the FH Foundation on Genetic Testing for Familial Hypercholesterolemia
According to a story from the FH Foundation, the non-profit organization has released a vital consensus statement regarding the diagnosis of familial hypercholesterolemia, which is the most prevalent genetic cause…
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New Study From The FH Foundation Will Investigate Genetic Testing of Familial Hypercholesterolemia
According to a story from Cardiovascular Business, The FH Foundation, which is a frontrunning patient advocacy and research organization for familial hypercholesterolemia, recently announced that it has begun enrollment for…
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Protecting Yourself From Hyperlipidemia
A healthy diet and a good exercise regimen go a long way towards maintaining good health. When health care professionals recommend this combination they’re usually trying to keep dangerous diseases…
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Have You Heard of this Government Office Coordinating Rare Disease Research?
According to a story from Charcot Marie Tooth News, a small subdivision of the National Institutes of Health (NIH) is leaning into its role to assist with research into rare…
While still in its infancy, gene therapy offers potential treatments for a variety of illnesses, with muscular dystrophy being just one of them. Source: pixabay.com
A Lot of People With Familial Hypercholesterolemia Are Not Getting The Treatment They Need
An article from SRN News is reporting that a lot of people with familial hypercholesterolemia are going through life without getting the treatments that could help them, such as statins.…
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These Drug Companies Are Trying to Make Treatment for Familial Hypercholestrolemia More Affordable
According to a story from PR Newswire, the pharmaceutical companies Sanofi and and Regeneron Pharmaceuticals are implementing a plan to make Praluent injections more accessible and affordable for patients with…
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A Clinical Trial Changed A Patient’s Perspective on Familial Hypercholesterolemia
According to a story from the Baylor College of Medicine Blog Network, Terry Lim, a women with familial hypercholesterolemia, views her condition with a new perspective after participating in a…
