Imagine you live in New York City and a procedure that could save your life could only be conducted in Los Angeles. Well rationally you would just take a plane trip right over to the west cost and get your treatment. Until the government tells you that’s a no-no, and sends you to Mexico.
BBC reports that those living in the eastern part of Scotland are treated in England, while all others are treated in Scotland. Right now, a discussion of creating a Scotland-wide service at Queen Elizabeth University Hospital in Glasgow is underway.
It was determined that those who traveled to England for treatment struggled with getting the appropriate aftercare because of travel logistics and financial concerns. The hurdles of living with dystonia can already be just high enough to cause a few stumbles, with these additional difficulties families are bound to fall left and right.
DBS is many times a last resort for dystonia patients who live with shaky hands. The treatment provides electrical stimulation that helps quiet the misfiring nerves. One of the challenges in establishing a unified service is the shortage of qualified neurosurgeons. A decision about the viability of such a program will be made within the next few months.
We are hopeful that the Scottish government will get its act together and make a change as soon as possible!
Even if you aren’t in the UK, share this article to support the Dystonia patients all around the world who just want some help.