I’ve found that through all of this, my son has started asking, ‘How can I help? What can I do?’
In her IDF Reel Stories video—a series that gives a face to the primary immunodeficiency (PI) community—Walsh talks about the remarkable and heartfelt ways IDF offered her help when she needed it most, including:
Walsh knew she had to become her son’s voice, but how? Thanks to the materials IDF provided, Walsh was able to create better questions for her doctor and learn how to be a better advocate for her child.
We all know that meeting other families who share your rare disease can be life-changing. That’s an experience Walsh wanted for herself, and through IDF, she’s been able to start up two meetings a year right in her area.
- Volunteer Opportunities
Walsh had a difficult five year journey to diagnosis with her son, something she doesn’t want for others. So just like IDF asked her once upon a time, Walsh called them up and asked, “What can I do?” Now, her state has started a new screening for SKID.