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Daily Archives: November 4, 2015

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Think You Know How Much HoFH Sucks? Read This!
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Think You Know How Much HoFH Sucks? Read This!

  • Post author:EmpatheticBadass
  • Post published:November 4, 2015
  • Post category:Homozygous Familial Hypercholesterolemia/Rare Disease

We may be heading into the holiday season, but there is no Ho! Ho! Ho! in HoFH. Most people can't even  say it, let alone try to live with it:…

Continue Reading Think You Know How Much HoFH Sucks? Read This!
Pastry Chef Hopes to Whip Acromegaly In The Bud
Pixabay

Pastry Chef Hopes to Whip Acromegaly In The Bud

  • Post author:Erica Zahn
  • Post published:November 4, 2015
  • Post category:Acromegaly/Rare Disease

At 23, Jessie Brenholt should be busy planning the rest of her life, such as marriage and having a family. Instead, the 2012 graduate of Le Cordon Bleu College of Culinary…

Continue Reading Pastry Chef Hopes to Whip Acromegaly In The Bud
Did you know it’s NERVEmber?

Did you know it’s NERVEmber?

  • Post author:Rebekah
  • Post published:November 4, 2015
  • Post category:Complex Regional Pain Syndrome/Rare Disease

Did you know it’s NERVEmber? It all began in 2007.  The Power of Pain Foundation created NERVEmber. November has become the month for the awareness of Complex Regional Pain Syndrome, or…

Continue Reading Did you know it’s NERVEmber?

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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