This Woman Lost Her Father, See Why the World Mourns

“We all need role models who fuel our desire to make the world a better place. Mine is my dad.”

These are the opening words of a powerful blog post by Pamela Sloate of Chronicles of a Dystonia Muse.

With the passing of her father, Martin Sloate, in late 2014, Pamela—a self-proclaimed “battle-clever Dystonia damsel”—describes in heartfelt detail the road he blazed for the entire Dystonia community.

Have you heard of the International Dystonia Symposium? Or the Dystonia Research Foundation (DMF)?

Dystonia Medical Research Foundation Logo
Martin worked as the initial treasurer for the Dystonia Medical Research Foundation. The organization now leads the charge in building awareness and support for Dystonia patients along with the International Dystonia Symposium.

You can thank Martin Sloate, in part, for both.

Martin played a profound role in these institutions; he helped grow a Dystonia community where before there was nothing, and nurtured  research and awareness toward new heights.

Even in the wake of his passing, Martin’s contributions continue to blossom with the ongoing efforts of the DMF, The Martin & Roberta Sloate Dystonia Research Fund, and finally, with his daughter, Pamela, who devotes herself to encouraging others with movement disorders.

“[My father] is truly one of the unsung heroes of the Dystonia community,”

writes Pamela. But that begs the question—who are the other heroes remaining unsung?

For everyone reading this, let me challenge you to unplug and think for a second.

Think of the heroes who raised you up: the family, friends, and doctors—even the people you only met once—who impacted you along the way.

Martin Sloate helped hundreds of thousands of lives by helping his daughter—evidence that you never know what you’ll accomplish by caring for your loved ones.

Treasure the heroes and role models in your own life—do that and you, too, can make the world a better place!

Read all of Pamela’s triumphs and struggles with Dystonia at her blog, or check out how she reacted when she heard her own voice on the answering machine.

As strong as she is, Pamela can’t tell her father’s story alone. Share this article by choosing your favorite social network below and get the word out about this remarkable man who changed the Dystonia community forever.

Kiki Jones

Kiki Jones

Kiki’s family loves to say, “People are like a baking project. At some point, they’re just done and they’re who they’re going to be.” Well, Kiki still has some baking to do, and she learns a lot from her loved ones living with chronic conditions, including mental illness and Behcet’s disease. With a BA in English, she’s using her skills to tell the stories of people like them.

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