If the recent Powerball taught us anything, it’s that humans love to get large sums of money.
DUH!
You’ve recognized the conversations. Co-workers standing by the water cooler talking about all the yachts, mansions, cars, and countless other luxuries they would buy if their lucky lottery pool numbers were pooled.
Usually, these talks then transition to how the workers would make a triumphant exit from their 9 to 5, but reality soon sets in.
They Don’t Win!
A mother in New Brunswick almost felt this same pain of missing out, except it wasn’t just frivolous wants she was missing out on. It was the medication to help her son living with Morquio syndrome.
The Global and Mail Canadian news site details the turbulent path to receiving treatment Carolle Mazerolle and her 10-year-old son endured waiting for government approval.
Although the Canadian government provides medication and healthcare assistance to its residents, much like the lottery, people living with rare diseases have to hope the odds fall in their favor for approval.
Thankfully, the $200,000 annual treatment was approved by the New Brunswick province and Carolle’s son was able to begin treatment. The “drug lottery” pulled their numbers, but one question remains.
What happens to those who numbers aren’t pulled?
With over 7,000 rare diseases, only a fraction of those have actual approved treatments, thousands of rare disease sufferers are left down and out of luck. The high cost of rare disease treatments doesn’t seem to be going down anytime soon no matter where you live resulting in one universal question.
“How will I afford to pay for something I never chose to have in the first place!”
Through spreading awareness, providing our audience with up-to-date information, and sharing the real-life difficult stories of patients, Patient Worthy is doing what it can to make a change.
But we know more needs to be done.
What do you think How can we tackle this almost surmountable issue together?
Leave your thoughts below as we all join in this fight together!
