Tags Posts tagged with "rare disease"

rare disease

After the 10th International Workshop on Waldenstrom’s Macroglobulinemia for researchers and clinicians, the IWWM10 International Doctor- Patient Forum will be held in the same...

Put Europe on your calendar for 2018! Usher patients, researchers and family members welcome to the two-day Symposium in July. For more information, contact ush2018@usher-syndrome.org

Come to the 14th Annual WORLDSymposium in San Diego to learn more about the latest news and research in lysosomal diseases! Discuss the most...

Researchers at the University of Sydney have discovered something big: molecules unique to the blood of people who have Multiple Sclerosis (MS). MS, a chronic...

Next time you order up fries, you might want to think twice before sprinkling on the sodium chloride—but not for the obvious health reasons. Sodium...

28-year-old Emily Rogers was training for a half marathon in Hamilton a few years ago, when she started having trouble breathing. She never could...

We don't laugh because we're happy – we're happy because we laugh. -William James There is nothing funny about having a rare disease, but learning to...

This past August, NHL veteran Brian Boyle was tired, but as a father of two children, being tired didn’t really surprise him. It was...

Reverend Jesse Jackson has been a guiding force in Civil Rights activism for over 50 years. He's a man of many facets: a baptist...

Earlier this month, the FDA approved Zelboraf (vemurafenib) for Erdheim-Chester disease (ECD) with BRAF V600 mutation. The final results indicated a response rate of 54.5%. This...

The exact causes of avascular necrosis are often a mystery. Much the same as the lives of dinosaurs. That's right. Dinosaurs. Keep reading to...

Have you ever googled the word "precision"? Words linked to turbine engines, long-lasting tires and even industrial cameras pop up. But, what I didn’t...

It’s a fact. Lifestyle and dietary changes are an important part of the formula to help lower “bad” cholesterol numbers. Whether you add more...

Jane Hamilton, a student at Century High School, Minnesota, has Tourette Syndrome, which is a disorder of the nervous system that can cause involuntary vocalizations...

When something in our computers doesn’t work or has a defect, we download a “patch” from the manufacturer, and call it repaired. With ongoing...

“It’s all in your head.” I dare say these are words that many people living with a rare disease, including dystonia, have heard. It’s absolutely...

Vinmec, a healthcare facility in Vietnam made bronchopulmonary dysplasia (BPD) history. They successfully treated BDP using a method that had never been tried before: the...

Children who like to dance are easy to identify. You’ll see them tapping their toes to pop songs, moving to the tunes on a...

Happy Friday Before Thanksgiving! As you prep your tummies for the feast next week, take a dive into some of our top stories this week. There...

Everyone with dietary restrictions knows the struggle of going to the grocery store, scanning the nutrition, and sighing when it doesn't quite meet the...

Scleroderma, which is chronic hardening and tightening of the skin and connective tissues, can have a huge influence on the body, both mentally and...

If you're a fan of indie documentaries and contemplating the purpose of life, you'll probably like Gabe. Long before the filming began, Gabe Weil's story...

According to sarcoidosisnews.com, acne causing bacteria may be the culprit in sarcoidosis, an inflammatory disease that affects the lungs and lymph nodes. Sarcoidosis can cause...

For better or for worse, dating has become increasingly dependent on swiping, matching, and shaking your phone. We live in a world of pings,...

It goes without saying that September 11th left a scar on the US that our country is still healing from 16 years later-- especially...