Angel Aid Cares’ Rare Mother Meetup

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Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup…

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Angel Aid Cares’ Rare Mother Meetup

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Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup…

Continue Reading Angel Aid Cares’ Rare Mother Meetup

Angel Aid Cares’ Rare Mother Meetup

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Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup…

Continue Reading Angel Aid Cares’ Rare Mother Meetup

Angel Aid Cares’ Rare Mother Meetup

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Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup…

Continue Reading Angel Aid Cares’ Rare Mother Meetup
The Secret Sauce for Bringing Innovative Therapies to Patients with Rare Diseases Faster
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The Secret Sauce for Bringing Innovative Therapies to Patients with Rare Diseases Faster

Written by Lori Lawter, MPH We’ve heard a lot about bringing drugs to market lately, especially in light of the COVID-19 vaccine.  You might wonder, “Is there a ‘secret sauce’…

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Indian Government to Place Regulative Measures on Crowdfunding for Rare Diseases
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Indian Government to Place Regulative Measures on Crowdfunding for Rare Diseases

Rare disease therapies are often difficult to access, whether that is due to price, a patient's location, or another factor. Because of these obstacles, many rare disease patients find themselves…

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Angel Aid Cares’ Rare Mother Meetup

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Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup…

Continue Reading Angel Aid Cares’ Rare Mother Meetup
Improving Rare Disease Clinical Trials
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Improving Rare Disease Clinical Trials

Clinical trials face many obstacles regardless of which disease they aim to investigate. However, rare disease trials face additional problems that don't typically impact studies for more common conditions. Small…

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The 2021 Rare Disease Week Discussed Policies Which Could Improve The Lives of Rare Disease Patients
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The 2021 Rare Disease Week Discussed Policies Which Could Improve The Lives of Rare Disease Patients

Rare Disease Week this year was July 14th-22nd and held virtually. With over 600 participates advocating for those living with a rare disease diagnosis and 250 patient organizations, this event’s…

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Patients and Families are Currently Relying on Community Funding for Rare Diseases

An article recently appeared in the AAMC News celebrating the creation of The Children’s National Rare Disease Institute (CNRDI). The article described the long road patients with rare diseases must…

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Angel Aid Cares’ Rare Mother Meetup

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Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup…

Continue Reading Angel Aid Cares’ Rare Mother Meetup
AI Vastly Improves Enrollment in Rare Disease Clinical Trials
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AI Vastly Improves Enrollment in Rare Disease Clinical Trials

Clinical trial recruitment has always been challenging. It is especially challenging for therapies being tested for rare diseases, an already small population. Clinical trials for rare diseases are small out…

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