The Kindness of a Stranger Helped Baby with Tyrosenemia
When Jon Miller, president and founder of the Network of Tyrosinemia Advocates (NOTA), learned of a family in Puerto Rico who had moved to Connecticut to get treatment for their…
When Jon Miller, president and founder of the Network of Tyrosinemia Advocates (NOTA), learned of a family in Puerto Rico who had moved to Connecticut to get treatment for their…
Raise your hand if a doctor’s accused you of pill-seeking? Blamed your symptoms on your weight or claimed you were too young, too black, too old, too Latino to be…
Leanna Mullen knows what it's like to look absolutely normal while in reality being very sick. She has Gaucher disease, a rare inherited condition where the body can't break down…
Are you an adult with isolated cervical dystonia? Wake Forest (Winston Salem, NC) is running a clinical trial of a new botulinum toxin. For more information click here. Or contact:…
Mi nombre es Bonnie y he estado luchando por mi vida durante dieciocho años, pero he estado luchando una batalla invisible durante los últimos doce. Esta es la historia #myinvisiblefight…