The Crooked World of Life with Dystonia

In a segment on Oprah, dystonia patient Rogers Hartmann agreed to wear a camera on her head to show how she experiences the world.

Bent at nearly a 90% angle, she frequently bumps her head, and has difficulty doing ordinary things like sipping coffee.

rogers hartmann
Rogers is determined to inspire other folks who live with dystonia…even from her 90-degree-angle view. Source: http://www.positivelypositive.com

At 37 years old, Harman was once an athletic, active, and healthy person. One morning, though, she woke up feeling like she had a stiff neck, with her head tilting to the right. Days later, her muscles were fully contracted bending her body to a 90% angle, and leaving her in constant and severe pain. It’s not uncommon for her to have 15 or 20 debilitating spasms a day.

Source: http://www.epainassist.com

Dystonia is a neurological disorder that causes involuntary muscle movement, and there is no cure.

In the wellness blog, PositivelyPositive, she describes “remembering a different me,” and details her struggle to live a so-called normal life. Hartmann receives Botox injections periodically to help with the pain, and continues to work as a television producer.