[I ]took a deep breath and fell into a deep sleep. Little did I know, I would stay asleep for a month and a half. Welcome to the blog of…
As we close out the first week of the #PWMemeWeek contest, we have gotten a few submissions that are notably awesome! Not gonna spill any beans yet but y'all better…
In a segment on Oprah, dystonia patient Rogers Hartmann agreed to wear a camera on her head to show how she experiences the world. Bent at nearly a 90% angle, she frequently…
I have early onset cervical dystonia. CD is a neurological condition that causes the muscles in my neck and shoulders to spasm involuntarily. For some people, it gets progressively worse…
Von Willebrand disease, or VWD, affects about 1% of the American population, but until recently, there was no dedicated therapy to treat it. If you're unfamiliar with this rare disease, VWD…
Dr. David Fajgenbaum was read his last rites- but he did not die, instead he turned the rare disease research model around. He is now working to expand the model…
Podría ser una historia de una novela de espías: Si bien se están pasando mensajes codificados, un extraño intenta infiltrarse e interrumpir la comunicación. Parte de la misión involucra el…
Today's talking tip meme makes us take a step back and think about how we approach compassion. It's not easy to be compassionate toward others if we don't show ourselves compassion when…
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