Happy Passover Weekend Patient Worthians!
This week Acromegaly is taking over! It’s no secret that rare diseases go misdiagnosed, so in Biblical times, it’s safe to say this disease when UNdiagnosed for those who had it.
We also have a fit and fab introduction to one of PW’s newest contributors and an awesome photo shoot/ interview with one of our favorite dystonia warriors Nolan.
We hope you enjoy another week of Editor’s Choice!
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Acromegaly: A Big Deal That’s Often Misdiagnosed
Acromegaly isn’t just disfiguring– it’s painful! But when it’s diagnosed early, treatments can be very effective.
But what about when it goes undiagnosed for a long time? What are patient outcomes then?
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Acromegaly, Goliath and the Book that Inspired Me
PW Writer JA knows the way to a girl’s heart: Malcolm Gladwell books!
In this post, she delves in to how scientists think Goliath was actually suffering from acromegaly, and how this story relates to the rare disease community today.
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On a Mission to be Fit and Fabulous, Meet Liz
Meet Liz, our newest PW Contributor. Liz is living with Cushing’s disease but it wasn’t an easy road to her diagnosis.
Liz is in great shape and approaching her rare disease with a positive attitude. Now that’s inspiration we can get behind!
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Nolan’s Journey with Dystonia
PW was fortunate enough to sit down with PW Conributor Nolan, a father suffering from dystonia.
His incredible outlook on life, his disease and running will be sure to motivate patients and caregivers alike!
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