Editor’s Choice: David and Goliath, Fit and Fab

Happy Passover Weekend Patient Worthians!

This week Acromegaly is taking over! It’s no secret that rare diseases go misdiagnosed, so in Biblical times, it’s safe to say this disease when UNdiagnosed for those who had it.

We also have a fit and fab introduction to one of PW’s newest contributors and an awesome photo shoot/ interview with one of our favorite dystonia warriors Nolan.

We hope you enjoy another week of Editor’s Choice!

 

Acromegaly: A Big Deal That’s Often Misdiagnosed

Acromegaly isn’t just disfiguring– it’s painful! But when it’s diagnosed early, treatments can be very effective.

But what about when it goes undiagnosed for a long time? What are patient outcomes then?



giant-1013731_1280

Acromegaly, Goliath and the Book that Inspired Me

PW Writer JA knows the way to a girl’s heart: Malcolm Gladwell books!

In this post, she delves in to how scientists think Goliath was actually suffering from acromegaly, and how this story relates to the rare disease community today.



PW_WebBanner_PATIENT_EXPERIENCE_1068x712-1

On a Mission to be Fit and Fabulous, Meet Liz

Meet Liz, our newest PW Contributor. Liz is living with Cushing’s disease but it wasn’t an easy road to her diagnosis.

Liz is in great shape and approaching her rare disease with a positive attitude. Now that’s inspiration we can get behind!



Sandro Georgi Photography, www.sgfo.to

Nolan’s Journey with Dystonia

PW was fortunate enough to sit down with PW Conributor Nolan, a father suffering from dystonia.

His incredible outlook on life, his disease and running will be sure to motivate patients and caregivers alike!


Jessica Gladwell

Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

Share this post

Share on facebook
Share on google
Share on twitter
Share on linkedin
Share on pinterest
Share on print
Share on email
Close Menu