For a child without a rare disease, a mother is a lot of things: chef, financial adviser, maid etc. All moms deserve kudos for their hard work. Raising a child isn’t easy. Being the mother of a child with a rare disease requires so much more moxie.

You become more than a mom.

You become everything that child needs: medical expert, medical advocate, administrative assistant, comforter, friend, and the only steady thing in his/her life that he/she can hold on to.

This Mother’s Day use show your love and support for rare moms, spread the word, use #raremoms along with #happymothersday for the mothers who have to be so much more than a mom.