What To Know When You Have EDS and Scoliosis

Ehlers-Danlos Syndrome is a complex genetic disorder that is caused by defects in the body’s structural proteins, also known as collagen.

Hypermobility of the joints is one of the most common features of EDS, as is skin elasticity.

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The correct response to all equally ridiculous questions. Source: www.giphy.com

According to the National Organization for Rare Disorders (NORD), there are a number of classifications. They are as follows:

The most common form is EDS hypermobility, causing loose joints, over-elasticity of the skin, and scarring. The most serious form, however, is the vascular type because even minor trauma can cause ruptures in blood vessels and organs.

People with EDS-vascular generally experience serious health issues by the time they reach 40 years old.

Recently, Dr. Marc Moramarco, a Boston-based chiropractor and an international expert in the conservative management of scoliosis (curvature of the spine), blogged about the treating patients who have both scoliosis and EDS.

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Even easy yoga should be approached with care if you have EDS and scoliosis. Source: www.giphy.com

In his conservative approach, Dr. Moramarco points out that not all the exercises that benefit scoliosis patients are appropriate for EDS patients because of the fragility of their vascular systems, and the fragility of their skin.

Erica Zahn

Erica Zahn

Erica Zahn is passionate about raising awareness of rare diseases and disorders and helping people connect with the resources that may ease their journey. Erica has been a caregiver, and is a patient, herself, so she completely relates to the rare disease community--on a deeply personal level.

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