If you think about the definition of rare, you realize just how accurately it describes people with rare diseases. You are one in a million and you are precious to those around you. The fight you fight every day makes you unique, because not everyone could be as strong as you.
This quote comes from Sean Hepburn who was the Rare Disease Day Ambassador of 2015, and rightly so.
“‘Rare’ is a word most often used to convey the same values as ‘precious’… unique… valuable. And if one adds up all of us precious beings that suffer from a ‘rare’ disease, the number is staggering – 60,000,000 and counting. The way each of us deals with what ails us is always unique and therefore, I feel it is quite easy for any of us to relate to ‘rarity’… that rarity that comes in those moments when we must truly face life and adversity by ourselves.”
Read more about him here.
