Lisa is living with Myasthenia Gravis, you can read more about her journey here.
Was this true for you too?
Once you fully accept your diagnosis you can focus your energy on coping the best way you can. Accepting an illness isn’t defeat, it becomes the way to strategize for your battle. This might mean changing your diet or adding naps to your day, the end result should always be you feeling better than you were.
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!