Pinterest: Home of DIY decorations, hair tips, cake recipes, and POTS treatment suggestions…
…Weren’t expecting that last one, were you?
In addition to memes and instructions for upcycling vintage suitcases, Pinterest has become a bastion of information for rare diseases.
The POTS/dysautonomia tag has all kinds of guides, diet ideas, and “Do’s and Don’ts” lists. Check out this pin from myheart.net:
Informative, interesting, and nicely designed—and just one of many.
On Pinterest, you can find tons of POTS insights and images.
My favorites?
- POTS cheat sheet with signs and symptoms
- Yoga guide for newbies
- This pun-tastic POTS post
- No, wait, THIS pun-tastic POTS post
- ALL THE PUN-TASTIC POTS POSTS
Now, try saying that last one three times fast…
It’s a beautiful thing, living in the world of Pinterest.
I say that, not just because Pinterest posts are pretty and fun, but because they are pretty, fun, AND a sign of community.
Anyone with POTS or other rare diseases don’t have to feel alone. They don’t have to rely solely on doctors who don’t understand, or well-meaning family members who can only be sympathetic—never empathetic.
There are others out there, and that community is never farther than one click and a free account away.
