October is Dysautonomia Awareness Month: Spreading Rare Disease Awareness
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October is Dysautonomia Awareness Month: Spreading Rare Disease Awareness

Since 2012, the nonprofit organization Dysautonomia International has organized Dysautonomia Awareness Month. With the goal of spreading awareness of the condition in the medical community and among the general population,…

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Three Young People With Chronic Illness Talk About the Challenges They Face
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Three Young People With Chronic Illness Talk About the Challenges They Face

  Three people with an eye on the future talk about their innermost feelings and the fact that their lives may be interrupted at any time by their chronic illness.…

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Coronavirus: Could Medical Rationing Put the Chronically Ill/Disabled in Danger?
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Coronavirus: Could Medical Rationing Put the Chronically Ill/Disabled in Danger?

In a story written for The Washington Post, Jessica Slice writes about a frightful predicament for patients with chronic illnesses that cause disability. Jessica lives with dysautonomia and hypermobile Ehlers-Danlos…

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Postural Orthostatic Tachycardia Syndrome (POTS): An Underdiagnosed Condition That Doctors Said Was All in Her Head

About one to three million people in the United States are living with postural orthostatic tachycardia syndrome (POTS). The disease affects one in one hundred teens and is more common…

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After Visiting Nearly 100 Doctors, This Man Still Doesn’t Have a Diagnosis for His Rare Disease
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After Visiting Nearly 100 Doctors, This Man Still Doesn’t Have a Diagnosis for His Rare Disease

According to a story from the Washington Post, Bob Schwartz is a walking, talking medical mystery. He lives with a strange and diverse array of difficult symptoms, and after being…

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This Young Man Accurately Diagnosed His Own Disorder But Doctors Did Not Believe His Diagnosis

Doug Lindsay ran track in high school. According to an article published by CNN Health, Doug had big plans as a senior at Rockhurst University in Kansas City where he…

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Changing Your Goals and Dreams: A Patient Story
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Changing Your Goals and Dreams: A Patient Story

Recording artist, published author, songwriter, musician, painter (acrylics)-- who would have thought the fun would begin after 40? I think I was born laughing. Humor has played an integral role…

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