Here’s the Unexpected Home of the Best POTS Information

Pinterest: Home of DIY decorations, hair tips, cake recipes, and POTS treatment suggestions…

what confused kroll show publizity wait what

…Weren’t expecting that last one, were you?

In addition to memes and instructions for upcycling vintage suitcases, Pinterest has become a bastion of information for rare diseases.

The POTS/dysautonomia tag has all kinds of guides, diet ideas, and “Do’s and Don’ts” lists. Check out this pin from


Informative, interesting, and nicely designed—and just one of many.

On Pinterest, you can find tons of POTS insights and images.

My favorites?

  1. POTS cheat sheet with signs and symptoms
  2. Yoga guide for newbies
  3. This pun-tastic POTS post
  4. No, wait, THIS pun-tastic POTS post

Now, try saying that last one three times fast…

It’s a beautiful thing, living in the world of Pinterest.

I say that, not just because Pinterest posts are pretty and fun, but because they are pretty, fun, AND a sign of community.

Togetherness hbo togetherness hbo

Anyone with POTS or other rare diseases don’t have to feel alone. They don’t have to rely solely on doctors who don’t understand, or well-meaning family members who can only be sympathetic—never empathetic.

There are others out there, and that community is never farther than one click and a free account away.

Kiki Jones

Kiki Jones

Kiki’s family loves to say, “People are like a baking project. At some point, they’re just done and they’re who they’re going to be.” Well, Kiki still has some baking to do, and she learns a lot from her loved ones living with chronic conditions, including mental illness and Behcet’s disease. With a BA in English, she’s using her skills to tell the stories of people like them.

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