We all need to cheer and whoop it up for these two brave women who suffer from Ehler-Danlos! Brooklyn Mills and Erika Crawford, who are living with the condition, decided to channel their energy into something positive, and it paid off! I first heard about their story through this news article, which I think captures their “take no prisoners” attitude pretty darn well.
What they accomplished is remarkable—I just wish I knew more about these gals.
While I am new to Ehler-Danlos, I am NOT new to championing causes and even organizing demonstrations if/when needed. Yes, I’ve got a few of those under my belt; I’m a bit of a healthcare activist.
Based on what I know about this genetic connective tissue disorder, I am totally impressed with the sheer will and determination that Brooklyn and Erika demonstrated. Naturally, they got ticked off because they needed help, which was falling on deaf ears, so they petitioned bureaucrats in Ontario to take notice of their plight.
Not only were they noticed, lawmakers established a special clinic for the condition!
The goal of the clinic is to provide information and support to people in the Ehler-Danlos community in order to improve the care they receive. And it’s about time!
Ehler-Danlos only affects under two million people worldwide, which is why it’s so hard to get pharmaceutical companies to develop treatments—their return on investment is limited.
