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Daily Archives: October 5, 2016

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How Dystonia Support Groups Can Change Your Life
Source: pixabay.com

How Dystonia Support Groups Can Change Your Life

  • Post author:Sabina Kennedy
  • Post published:October 5, 2016
  • Post category:Dystonia/Rare Disease

How does a diagnosis of dystonia change your life? Dystonia is a disorder characterized by involuntary muscle contractions that cause slow repetitive movements or abnormal postures. The movements may be…

Continue Reading How Dystonia Support Groups Can Change Your Life
Could You Do What This Man with Dystonia Has Done?
Source: www.pixabay.com

Could You Do What This Man with Dystonia Has Done?

  • Post author:Sabina Kennedy
  • Post published:October 5, 2016
  • Post category:Dystonia/Rare Disease

Have you ever tried to run a marathon? If so, you’ll know how taxing and strenuous the race can be on your body. Now, consider this: What if you had…

Continue Reading Could You Do What This Man with Dystonia Has Done?
Addison’s Disease: What to Know and How to Fight

Addison’s Disease: What to Know and How to Fight

  • Post author:Erica Zahn
  • Post published:October 5, 2016
  • Post category:Addison's Disease/Rare Disease

What happens if your adrenal glands produce too little cortisol, and perhaps an insufficient level of aldosterone, as well? Addison's disease is the end result and it can be life-threatening.…

Continue Reading Addison’s Disease: What to Know and How to Fight
Does Anybody Really Know What Cushing’s Is?
[Source: pixabay.com]

Does Anybody Really Know What Cushing’s Is?

  • Post author:Alisha Stone
  • Post published:October 5, 2016
  • Post category:Cushing Disease/Rare Disease

Great news (I hope) for people who suspect they may have a medical condition such as Cushing’s disease and are concerned about their health. A clinical trial made public in…

Continue Reading Does Anybody Really Know What Cushing’s Is?
Why Musicians Suffer With Focal Dystonia
[Source: pixabay.com]

Why Musicians Suffer With Focal Dystonia

  • Post author:Sabina Kennedy
  • Post published:October 5, 2016
  • Post category:Dystonia/Rare Disease

Do you experience pain? Weakness? Swelling? Burning sensations? Dull ache over an affected area? Oddly enough, your career may be the source of your symptoms. Not to stir panic but…

Continue Reading Why Musicians Suffer With Focal Dystonia
Asista al Global Genes Patient Advocacy Summit desde su sofá!
Pixabay

Asista al Global Genes Patient Advocacy Summit desde su sofá!

  • Post author:Patient Worthy Contributor
  • Post published:October 5, 2016
  • Post category:Rare Disease

Gracias a Dios por el siglo 21! Si usted ha estado muriendo para asistir a la Cumbre de Apoyo al Paciente de de Global Genes en California, pero no hay manera de que…

Continue Reading Asista al Global Genes Patient Advocacy Summit desde su sofá!
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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