How “My Rare ID” Supports the Rare Disease Community: An Interview with Jeff Lord (Pt. 2)
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How “My Rare ID” Supports the Rare Disease Community: An Interview with Jeff Lord (Pt. 2)

Before you continue, make sure you've read Part 1 of our interview, where we discussed the Lord family's story and experience with rare disease, and the development of MobiMedQR. This tool, which…

Continue Reading How “My Rare ID” Supports the Rare Disease Community: An Interview with Jeff Lord (Pt. 2)

An Addison’s Disease Story: Multiple Rare Diagnoses Often Means a Longer Waiting Game

Emily Dover  This is Emily Dover's story. At birth- perfectly healthy newborn, smaller than her siblings (8 pounds) 1 week- was having trouble sleeping and began crying in pain 4…

Continue Reading An Addison’s Disease Story: Multiple Rare Diagnoses Often Means a Longer Waiting Game