An Addison’s Disease Story: Multiple Rare Diagnoses Often Means a Longer Waiting Game

Emily Dover  This is Emily Dover's story. At birth- perfectly healthy newborn, smaller than her siblings (8 pounds) 1 week- was having trouble sleeping and began crying in pain 4…

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Jon’s Adrenoleukodystrophy Journey
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Jon’s Adrenoleukodystrophy Journey

I met Jon at the 2018 United Leukodystrophy Foundation Conference and had the privilege of learning his and his family's story. Jon was born in Wisconsin in 1992, joining the…

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ICYMI: Help this Mother Raise Money for 5-Year-Old Daughter’s Menopause

Puberty, development, and menopause - most parents have found that explaining these concepts to kids, though entirely natural and unavoidable, comes with a certain degree of discomfort. In girls in…

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Nothing About Addison’s Disease is Simple, Here’s Why
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Nothing About Addison’s Disease is Simple, Here’s Why

People with Addison's disease often appear just fine on the outside, but on the inside, it's another story. Why? Just above the kidneys are two hormone-producing glands called the adrenal…

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This Woman Found Inspiration From an Olympian with Addison’s
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This Woman Found Inspiration From an Olympian with Addison’s

Inspiration can be found in almost anything. Frequently, it’s a famous person from history who has overcome adversity to achieve some amazing feat. Sometimes it’s the busy person who finds…

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This April, You Can Learn the Latest in Endocrine Science!
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This April, You Can Learn the Latest in Endocrine Science!

The Endocrine Society's Endo 2017 is the world's largest endocrine science presentation. Attendees will be able to network, learn about the newest product and technology updates, listen to thought-leaders, and…

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